The Presence 5 for Racial Justice Framework for anti-racist communication with Black patients
Health Services Research
Objective: To identify communication practices that clinicians can use to address racism faced by Black patients, build trusting relationships, and empower Black individuals in clinical care. Data Sources: Qualitative data (N = 112 participants, August 2020–March 2021) collected in partnership with clinics primarily serving Black patients in Leeds, AL; Memphis, TN; Oakland, CA; and Rochester, NY. Study Design: This multi-phased project was informed by human-centered design thinking and community-based participatory research principles. We mapped emergent communication and trust-building strategies to domains from the Presence 5 framework for fostering meaningful connection in clinical care. Data Collection Methods: Interviews and focus group discussions explored anti-racist communication and patient–clinician trust (n = 36 Black patients; n = 40 nonmedical professionals; and n = 24 clinicians of various races and ethnicities). The Presence 5 Virtual National Community Advisory Board guided analysis interpretation. Principal Findings: The emergent Presence 5 for Racial Justice (P5RJ) practices include: (1) Prepare with intention by reflecting on identity, bias, and power dynamics; and creating structures to address bias and structural determinants of health; (2) Listen intently and completely without interruption and listen deeply for the potential impact of anti-Black racism on patient health and interactions with health care; (3) Agree on what matters most by having explicit conversations about patient goals, treatment comfort and consent, and referral planning; (4) Connect with the patient's story, acknowledging socioeconomic factors influencing patient health and focusing on positive efforts; (5) Explore emotional cues by noticing and naming patient emotions, and considering how experiences with racism might influence emotions. Conclusion: P5RJ provides a framework with actionable communication practices to address pervasive racism experienced by Black patients. Effective implementation necessitates clinician self-reflection, personal commitment, and institutional support that offers time and resources to elicit a patient's story and to address patient needs.
Gordon and Betty Moore Foundation
African American, Black, communication, community-based participatory research, design thinking, human-centered design, patient care, qualitative
Cati Brown-Johnson, Joy Cox, Megha Shankar, Juliana Baratta, Gisselle De Leon, Raquel Garcia, Taylor Hollis, Mae Verano, Kelsey Henderson, Mauranda Upchurch, Nadia Safaeinili, Jonathan Glazer Shaw, Robert J. Fortuna, Clyde Beverly, Meredith Walsh, Carlie Stein Somerville, Marie Haverfield, Sonoo Thadaney Israni, and Abraham Verghese. "The Presence 5 for Racial Justice Framework for anti-racist communication with Black patients" Health Services Research (2022): 263-278. https://doi.org/10.1111/1475-6773.14015