The Caregiving Journey: Service Provider Reflections on the Experiences of Family Caregivers Supporting Individuals With Serious Mental Illness

Publication Date

2-11-2026

Document Type

Article

Publication Title

Social Work in Mental Health

DOI

10.1080/15332985.2026.2627262

Abstract

Limited research illuminates the prolonged, dynamic nature of caregiver responsibilities while caring for a family member with a serious mental illness (SMI). Using semi-structured interviews with mental health providers (N = 16), we examined challenges that caregivers experienced in various stages of the caregiving journey and the accessibility of supportive resources to meet their needs. Thematic analysis reveals unique challenges experienced in early stages of SMI, in ongoing daily routines of caregiving, and in the longer term, emphasizing the importance of assessing caregiver well-being and providing access to support across the caregiving trajectory to sustain persons with SMI and their family caregivers.

Keywords

Caregiving trajectory, family caregivers, mental health providers, qualitative study, serious mental illness

Department

Occupational Therapy; Social Work

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